Can anybody tell me what to expect with poly cystic kidney disease and is it possible to have a "normal" life without dyalasis or transplant?
any help would be appreciated
by 
staffie
ANSWERS: 2
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PKD can cause cysts in the liver and problems in other organs, such as the heart and blood vessels in the brain. It is also the forth commonest cause of kidney failure. Symptoms can include blood in the urine, vague discomfort or aching in the abdomen and/or lower back, attacks of sudden and severe pain in the abdomen and/or lower back, headaches & urinary tract infections. I don't think it would be possible to lead a "normal life" without dyalasis/transplant, because eventually kidney failure will occur and for around seven out of ten of those with adult polycystic kidney disease this will happen by the time that they reach 65 years of age. When this time comes then kidney dialysis or kidney transplant becomes necessary.
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My husband was diagnosed 12 yrs ago (at age 37) with PKD, and was told he would probably need a transplant within 5 years. He lost 60 lbs, and took up biking. We changed his diet to reduce protein, to help give the kidneys a break. His overall health became better than ever. He was put on the transplant list in December, 2006. It takes about 3-4 yrs to get a kidney if you don't have your own donor. Just this week is the first time that some of his labs came back with dangerous levels. He had to be in the hospital for 3 days on IVs, but he is home, and approved to leave on a vacation tomorrow. This disease can be well-managed, and your quality of life can be great. Do the best you can to keep your overall health up, and you are a better candidate for avoiding dialysis as long as possible, and for successful surgery. Best of luck to you.
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